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I was somewhat aware of my erratic pursuits of dopamine and novel stimuli, but the problem was that there wasn’t a language in my culture to identify and to describe these issues, and certainly not in a healthy, constructive way.
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In less than two weeks, I begin the end of my undergraduate career: the end of an era. The end of my life as a student, the precipice before I have to figure it all out somehow.
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When you read my columns, I want you to laugh along with me at the absurdity of this disabled body of mine. My goal is not to make you feel sorry for all that I endure.
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The reality is, I’m in my 20s and I’m irresponsible. I’m still figuring out who I’m supposed to be and when all of this pain is going to be worth it.
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While I might be away from home, let me make one thing clear: I am not on vacation. This is still my life, in a different location, with a slightly different schedule.
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Sharing this story allows me to bring some guidance regarding what everyone can do to more inclusively interact with those who experience nonvisible disabilities, enabling them to feel more genuinely seen, heard and supported.
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I really dislike the term “caregiver” in the context of a romantic relationship because it implies a dependency that is not mutually reciprocated.
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I like to think I have as much sex as your average 22-year-old, if not more. Honestly, you’d be surprised how much sex people with ostomies have.
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This birthday blues was a side effect of my disabled childhood, my birthday a casualty of my own internalized ableism, its voice ever-present: Nobody will want to come[; you don’t have any friends anyway; and you don’t have anything in common with people your age.
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Why does it make you feel uncomfortable when I bring up aspects of my everyday life as an ostomate?
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